Monday, May 16, 2011

what now?

Wow its been a while since an update and a lot has happened!
Lets see, last time I blogged I was dealing with the dreaded kidney stones!
After I was seen on April 19th and monitored over night I was seen again on the 22nd with awful pain again. I was sent home and told to deal with it until the stones could pass. That whole week I was back at work, able to manage the pain with tylenol and a heating pad at all times. I made an appointment with a urologists on April 29th because I knew I could not live like that the rest of this pregnancy. Well my body had other plans.
I stayed up late on April 28th waiting for midnight so I could get in the mood to watch the royal wedding! As the night went on I noticed my kidney pain was slowly increasing. By 1 am on April 29th I was laying in bed moaning in pain. Isaac came in to find me sweating, shallow breathing, and crying as I tried to find a comfortable position. He had me take 2 oxycontin in hope to relive some of the pain. Unfortunately my pain only increased to the point where I was calling out for help. Isaac had never seen me like that, to be honest I had never been in that type of pain in my life. I would like to remind you I woke up during my pacemaker surgery, paralyzed but able to feel everything. Granted the doctors noticed right away and I was out again. Up until this point, that was the worst pain of my life!
So getting back to it, I started to become nauseous and delusional from the pain. Isaac tried everything to make me comfortable and help me ride it out! We were hopeful I was passing the stone finally! That was not the case.
By 4 am we left for the hospital, all I could say at this point behind my tears was help me over and over again. I wish I could find the words to explain what that pain felt like. I can only describe my reaction and hope it paints a picture for you.
Once at the hospital Isaac put me in a wheel chair and ran me inside. We went up to labor and delivery (due to how far along I was the ER would not take me). The nurses that's were there remembered us from the week before. At this point I could hardly talk. All I could get out were the words " help me" broken up by my sobbing. The got me in a room immediately and began giving me morphine. When the morphine did not help the gave me the strongest drug the hospital had. I can't remember the name, it started with a D. They had to give it to me through IV every hour to keep me comfortable. Time passed and more test were done. The problem was my kidney stones could not be seen. They needed to do a CT but could not due to the baby. By this time I was vomiting about every hour due to drugs, pain, and anxiety.
A urologist came in and gave me the news that surgery was necessary to fix my problem. This surgery to insert a stint is dangerous for pregnant women because it can cause preterm labor, but at this point my pain could do the same and if I didn't fix the problem I could go into kidney failure! So I cried alot and my wonderful nurse sat there holding my hand telling me not to be afraid. I love that women!
At 5 pm on April 29th Isaac came with me as I went into prep! My anesthesiologist came in to tell us what to expect. She said I would be given meds to knock me out and so would Hunter. She then proceeded to tell me how she would monitor me and my heart but could not do the same for my son. We started asking all the questions like, will he be ok, what's the chances of him not coming out, what's the % blah blah blah! All she could say was "I can't guarantee anything, I can't promise hes coming out alive" my heart sank and I began to refuse to do this! Luckily my OB stepped in and made the call that I would remain awake and that way Hunter would be exposed to very little of the drugs. Still scared but relieved I decided to go through with it. So I got a spinal and was numbed from the waist down. They gave me something to relax me as well. The way a stint goes in is the same path your urine comes out. So through my pee hole in my bladed up the ureter and in the kidney. Then it sits there from the kidney to the ureter and lands in the bladder. The point is to open that pathway so the kidney can function and drain. Mine had been backed up for 2 weeks by this time, it was indeed angry.
After surgery I felt great! I had no pain and thought " wow this will be easy!" I was wrong! I was drugged! At around 4 am my bladder felt like I had to go to the bathroom but I had no relief (I had a catheter in so I was going to the bathroom ) the problem was my bladder recognized a foreign object in it and was spasming to get it out. So here I was in pain again, vomiting, and thinking "what did I do?" I was told this is how it could be the rest of my pregnancy. WHAT!?! well my bladder also had a hard time functioning from the drugs so it would literally take me an hour to pee out 1 fluid oz! Awful! I was on day 2 of no sleep and exhausted, miserable, and wanted the stint out asap. Well thanks to my lovely team they sedated me. I slept for 18 hours and was able to bypass that awful time. Then on Sunday May 1st I was sent home! Yay!
Those first few days being home I was scared because of how uncomfortable I felt. I tried to get off my pain pills for the sake of my son and I couldn't. I cried a lot. I felt like a failure. I felt like because I wasn't strong enough he was going to suffer from the side effects. But after a week I noticed my body taking to the stint well, better then most. Before the surgery the doctor told me "you'll come out of this 3 ways: in worst pain, same amount of pain, or better pain" yeah my odds were not good! But I seem to be on the better end. I'm on bed rest because the more I move the more my stint moves and gets irritated causing pain. There are moments where it feels like a bladder infection, ya gotta go potty but nothing come out! So with my 6 meds and a painkiller only when needed I'm able to maintain pretty well.
I do miss my old life of work and on the go when I please, but knowing this can still cause premature labor I'm ok waiting it out.
All I want is my healthy happy boy. No matter what it takes.
I am so thankful for all the support and love during this difficult time. Financially its scary, we weren't planning on me not working so soon but we know God holds us and we can do our part and he will provide. He has so far.
At our last appointment Hunter is 11inches long, 1.6 lbs and healthy. We did find 2 Holes in his heart one in the atrieal and one in the ventricle (just like me. Surgery correct the atrieal and the ventricle closed on it's own) we can see the tissue to close the atrieal, the ventricular was a little harder to tell but we'll evaluate him at birth and go from there!
Thank you for prayers and concerns! We are truely blessed!
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