Let me tell ya!
After a few meetings with some high-risk maternal fetal medicine doctors I kind of have a pretty good idea of what to expect!
Let me back it up for a quick second! I was born with congenital heart disease and a rotation disease. Combined, my conditions medical term is situs inversus, dextrocardia, atrial septal defect, with the assistance of a pace maker, murmer, arithmia, and a ventricular septal defect. Forgive me for any misspending! Basically that all means I was born with all my organs backwards, my heart wiring is backwards and reverse, I had 2 holes in my heart and my original pacemaker crapped out on me! Now back to the pregnancy! Oh and all that combined makes me rare!
So the pregnancy! The biggest concern is how my heart will take the stress of a growing life on me. When you're pregnant the heart increases in size and the blood volume increases as well. There is an input and out put in your heart. The input is blood coming in the heart! That is not the concern. Our concern is my out put. Can my bottom chamber put out the blood it takes in? That has always been a struggle for my heart, which has caused low blood pressure, and my bottom chamber needing an artificial pacemaker to pump it, and poor circulation. The other concern is can the patch in my heart handle the pressure of this new stress or will it break causing the damage that almost killed me as a child? This is a possibility. With this new higher amount of fluid pumping through my body I can go into heart failure before the baby is born or after. I know the signs and symptoms of that incase it happens!
so at some point my work load will lighten, and if I have to be on bed rest it will be in the hospital, not the comfort of my own home.
We pray that doesn't happen!
As it stands now my heart is handling this very well so far. My blood has already increased 30% and my heart has started to enlarge in a healthy manner. So far so good! Lets keep trucking!
Now the baby has a chance of heart disease as well. If I just had a heart problem it wouldn't be so bad for the baby but because I have a rotation condition to (backwards organs ) the baby's risk is increased as well. So at the 20th week we will start to look at Hunters anatomy. The doctors will check his heart for any signs of damage or disease and we will continue to monitor it.
In all honesty I know my strength and I'll be fine but I want prayers, love, and thoughts of health for my miracle baby Hunter Aaron Jones!
So that's about it. In 2 weeks I lost a little bit of weight and I need to watch that. I will also experience lower blood pressure, higher levels of dizziness, and cold chills due to poor circulation because of my condition. I am so confident in my team. I have 3 high risk specialist, my cardiologist, a pediatric cardiologist, and a cardiologist who specializes in women with heart disease. I am ready and prepared for anything! We will do an ecocardiogram second and third trimester along with other monitoring methods.
So that's about it for now!
I don't tend to talk much about my condition or the seriousness of it so it comes across as non serious, but it is and I know that. I come to you with a humble heart asking for love and support. Sometimes it is joked about the baby coming out backwards because of this condition but I ask respectfully for none of that at this time. Please feel free to ask me any and all questions. I would be lying if I said I wasn't scared or worried after hearing all this. But that wont do me any good so I hold my head up, go about my everyday life, and stay confident in my own strength through God.
Thanks for reading! I love you all!
PS I'm sorry if I say no to certain social events, I just need to listen to my tired body!
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